A First-of-its-Kind
Survey Where You
Own The Narrative
Our ultimate goal is to gather robust, actionable data and evidence to support advocacy efforts, inform policy decisions, and significantly improve the lives of people living by vitiligo globally.
Take Survey Today
100 million+
People affected globally by Vitiligo
More than 50
Patient Organisations
More than 30
Countries Represented
If you are a person living with vitiligo or caregiver of a child with vitiligo, we want to hear from you!
Take our global survey today.
There's more to vitiligo than what you see, help us capture the whole picture
Take Survey Today
Why This Survey Matters
The wide-ranging impact of vitiligo on people living with the disease across the life course , and their families and caregivers, is rarely included in published literature, and in many cases the patient voice remains unheard.
Patient Experience (children and adults)
Family & Caregiver Experience
Changing Impact Over Time
Emotional Impact of the Disease
Social & Professional Discrimination
Impact on Daily Life, School and Work
Financial Burden
Understanding of Treatment Options
Community Impact on Cultural Groups
Without this data , the true impact of the vitiligo and exprience of people living with the disease will remain unknown ,and the disease will continue to be deprioritized on policy agendas globally
Real People , Real Stories.
Vitiligo affects people all ages , backgrounds and walks of live. Every face tells a story worthy hearing
Vililigo Patient & Caregivers
 Experiences: A Global Survey
Karen Ferez (Mexico – Spanish Speaking)
Jean-Marie Meurant (France – French Speaking)
Stephen Taylor (USA – English Speaking)
Paul Monteiro (The Netherlands – Dutch speaking)
Vitiligo affects approximately 100+ million people across the world, yet research and awareness remain limited compared to other skin conditions. The World Health Assembly has recognized skin diseases as a global public health priority, creating an unprecedented opportunity for change.
Why the VPV survey?
VIPOC, uniting 45+ patient organizations across 30+ countries, is conducting this first-of-its-kind global survey. Our ultimate goal is to gather robust, actionable data and evidence to support advocacy efforts, inform policy decisions, and significantly improve the lives of people living by vitiligo globally.
Shape the Future
Survey insights will drive a global whitepaper and call-to-action, influencing healthcare policies and awareness worldwide.
First-of-its-kind Global Survey
A patient organisation-led initiative to understand the experience of living with or caring for someone with vitiligo across the world.
Your Voice Matters
Help generate evidence to support advocacy and policy change for vitiligo at the global level. Every response contributes to meaningful change.
For Patients & Caregivers
Whether you are living with vitiligo or care for someone who does, your unique perspective is essential to his ground breaking research.
Survey Now Available
The survey is available in 16 languages to ensure a truly global perspective.
What comes next ?
How your participation will lead to real-world change.
Scientific Impact
Journal Publications
Turning lived experience into research that informs the global medical community.
Strategic Adovacy
Global White Paper
An evidence-based roadmap for better Vitiligo care and policy change.
Regional Power
Localised Reporting
Providing VIPOC Vice Presidents with regional data to drive local health impact.
Local Support
Tailored Resources.
Supplying support groups with data-driven,community-specific slides.
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In collaboration with and with the support of the following scientific societies and organizations:
Our Partners
